Things have been pretty quiet – pretty routine – pretty “normal” – at our house the last few weeks. Regularly scheduled appointments and therapies have happened. Some fun outings have happened. Nothing too earth-shattering.
I did chat with Dr. R. about all Kiran’s upcoming procedures and tests that require sedation or anesthesia. We seem to be on the same page as far as keeping it to a minimum as much as possible while making sure we are monitoring his heart closely. Nothing as concrete as I would have liked – I don’t have a one year plan or anything, no map or guidelines, as usual – but I think we at least have a good outline of next steps. March 1st is our next big appointment day, and we are hoping Kiran cooperates for an echo (These are often sedated at this age too – it never ends!).
I just got the call today that we have a slot and insurance approval (finally!) for feeding therapy at Childserve!!! We will start March 2nd, and we have a slot right after our physical therapy there. Thank goodness – one trip to Childserve every week is plenty – though we do love and appreciate our services there so far.
I wasn’t as excited about the phone call I got yesterday from Iowa City. We have a date for Kiran’s eye surgery, and it is sooner than I expected. March 22nd. More on that as the time gets closer, but for now, please remember that date as we will again ask for your thoughts and prayers. Eye surgery isn’t heart surgery…but it’s still surgery, and it’s still a hard thing to wrap my brain around.
For tonight, our date will be staying in. Yummy snack foods, a walk, snuggles, early bedtime (for the K-man at least)….Nothing earth-shattering…just the way we like it.