This is absolutely an angry post.  I have had the most frustrating, stressful day ever.  I have been on the phone way too frequently with medical people trying to figure out the best course of action for Kiran’s upcoming lung perfusion scan.

If you are reading this blog and you are a member of our medical team, I promise I am actually not talking about you.  But, you may want to hear this (and you may want to make sure everyone working in your office is reminded of it): MY SON’S HEALTH AND WELL-BEING IS NOT A FOR-PROFIT ENDEAVOR.

Let me say that one more time, in a more clear way: I don’t care if you want to make money having my son’s procedures done at your facility.  In fact, if I get the feeling that is the only reason you want it done there, it leaves a bad taste in my mouth and makes me want to go anywhere but there.  My number one priority is making the best decisions, with the information I have, for my son to be as healthy and safe as possible.  As someone in the medical profession or working in a medical office, this should be your number one priority too.

I will not stand for being made to feel embarrassed about doing what is best for my son.  I will not stand for being made to feel badly about making phone calls on my own to other facilities to find out their protocols for a procedure that can have a significant impact on my son’s health.  I will not be bullied into doing something I don’t think is safe for my son.  I have fought hard to keep him alive and healthy and happy for over a year, and I will never stop that fight.  In fact, I am now armed with more knowledge and more experience…and today, Mama Bear had to wake up.

I will never stop fighting for my son.  Ever.


One thought on “Frustration

  1. You go Mama Bear !! I had to do the same type of thing for my son when he was younger. YOU are his best advocate and Never let anyone say otherwise. You know your child best !! Way to stay on top of everything.


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