Kiran is doing beautifully. It looks like we will be discharged tonight, in fact. They are encouraging us to get out of the hospital to limit his exposure to all the germs.
The information from the cath was both expected and unexpected. Mr Kiran is a very complex case because he has so many MAPCAs that are abnormally formed. Some pressures are good. Some are high. A lot of it was hard for me to follow after such a long, emotional day.
We were told, in no uncertain terms, that we need to go to the best surgeon who handles these specific complex cases. In order to give Kiran his best chance, we will be traveling to Stanford. His surgical repairs (we were told 3-5 surgeries over his lifetime) will be done by Dr. Frank Hanley.
Thank you to everyone who thought of us today. We are so lucky to have so many people on our team. We continue to need you all.
One step, one day at a time! I can’t imagine how difficult this is for your family. The prayers are coming from many as we follow your journey with your precious Kiran!
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So glad this day is past for you and that you will have the “best” the surgical world has to offer for your sweet son. Many prayers answered! Let us know if there is any way we can help.
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