Kiran’s symptoms have remained stable over the past few months, so today’s visit was pretty straightforward.
The medical assistants who draw blood for labs in the oncology department are truly incredibly good at their jobs. Kiran has notoriously been a challenging poke, and I have felt, both times, the blood draw has gone smoothly. I am thankful for that. It’s nobody’s favorite thing.
Dr did a quick exam. She asked me to send photos documenting the flushing symptoms because she plans to present Kiran’s case to the adult neuroendocrine tumor team in a few weeks. I guess neuroendocrine tumors are fairly common in adults but rare in children, so she wants to make sure she isn’t missing anything. I appreciate her.
I did ask if she has any other thoughts, aside from this tumor, as to what might be going on. She really doesn’t. His symptoms aren’t really consistent with anything else, but it may just be a part of his genetic syndrome (since we don’t know much about that either – this kid just has to be rare in every area).
So. We wait on lab results and suggestions from the adult team. Depending on all of that, it might be time to plan for more imaging. Watch and wait. Wait and watch. The path we walk on the daily.