I have been reflecting on this since someone said it to me on Friday night. Paraphrasing: “I read your blog … I love how you always make him seem powerful; he never seems vulnerable”

I honestly have never thought about that before. I write very honestly. Most of the time, when I write, it is because I am processing or feeling something that I simply cannot contain. Writing is my therapy. It is my stress relief. It is how I purge my brain or my heart of the whirling tornado they often live in.

What does that mean?

It means that I truly see Kiran as powerful.

It makes sense. I have always been in awe of his strength. His joy in the face of – everything.

When I really examine his life, though, here is the truth: He IS vulnerable. He is dependent on those around him to care for him, to assist and direct him in all “activities of daily living”. It is why it is so important to have a strong team around him. It’s why I have fired medical professionals, why I am particular about respite care providers, why I am so thankful for his core academic team.

I think my writing doesn’t always convey that because I know my intentions with him are to care for him well. He is my priority. Our lives are molded to care for his needs. I try to give him as much say in his life as is possible. I want him to be as independent as it makes sense for him to be.

I also firmly believe that our dependency on others – our vulnerability – makes us powerful. We are stronger together.

It was really one of my most favorite things anyone has ever said to me, but man, it made me think.